I am the perfect weather balloon. Mother said cold front was coming yesterday, but my body say no, everything's cool.
Late last night I have a terrible spasm that felt like a menstrual cramp, only in the bladder, and that HURTS.
I wake up today in pain... and wouldn't ya know, the cold front was a day late.
------
As I stated earlier the best coping strategy is to distract yourself. There are some flares you can control such as stress or food flares, but then there are others when you can do nothing like a flare caused by the weather. The only thing you can is take all your pain meds, tether yourself to a heating pad, and then distract yourself. Unlike the advice my mom gives me, sleeping does not work if you are in pain. Works great if you have the flu, doesn't work if you have IC unless there's a drip of morphine going into you.. not to mention holding in urine too long while sleeping all day is just going to make it feel worse when you wake up.
That said, I was pretty happy to open my present and find Skyrim. I was like, cool, I'll go play it now! I remember the soothing music from its predecessor Oblivion helped me stay relaxed a lot.
Well, Skyrim had DRM added to it. For non-gamers, that means that you must have internet connection. For someone living with a 10gig cap of bandwidth, and when the DRM makes you DOWNLOAD the game despite the fact that you BOUGHT the CD, its going to cost a lot of time and money. So I started off mad.
Then about 14 minutes into the game it froze and locked up. I run a 64bit system which needs 4gigs of ram. Skyrim was made only to use 2gigs. So, the memory is getting clogged. Someone fixed this, but with the DRM patch that was forced on me with the CD it broke the fix. So I am the unhappy owner of a game that crashes constantly.
Oddly, I find that anger helps my symptoms. Probably because it distracts me. But I did sent corporate a nasty email.
As for the flare itself it's pretty nasty.. despite my drug-lord level of pain pills, its just helping me ignore the pain rather than get rid of it like it usually does. There's really nothing else I can do. It's feeling pretty bad now. When I'm in this state I don't want to talk to other people or play with them. I usually just browse forums, blogs, or single players games. Guess I'll save every 2 minutes in Skyrim.
For years I suffered from severe back pain and despite medical records from specialists I was treated like a street level drug abuser by at least 20 different doctors. I was past the end of my rope. Two years ago I found a doctor who had compassion and put me on Oxycontin and now I actually have a very productive life!
ReplyDeleteJym Leonhard
findrxonline.com/blog
Good for you =)
ReplyDeleteThe hardest part of any disease isn't living with it, it's finding Dr.Right.
I was extremely lucky in that it only took me two tries to find the right urologist, but that was only through the help of the Interstitial Cystitis Network's list of doctors who take interested in IC. I saw one who was about 4 hours away who actually did speeches and FAQs on IC so I figured she'd at least me more knowledgeable than me. She only makes me go twice a year due to the distance, but it had been the best thing to ever happen to me since this disease. Now I have *proof* of what no one else could see. But even with that it's a trouble explaining the situation to friends.
For the both of us I'll assume the pain is still there.. but at least for the most part we're doing a lot better. Do cold fronts effect you any?
Cold weather definitely makes my IC worse and I end up flaring for weeks at a time!!
ReplyDelete