Thing about chronic illnesses and support groups is that when a person starts to feel better they no longer visit the group/write about their illness, and so I haven't been updating much though I assure you I'm still around.
There are times during the day when I can't even feel my bladder, which is amazing for someone with IC. I'm not entering remission though. We had a 20 degree drop from high 90s to 70s after a storm and I hurt a lot.. meaning barometric pressure still will control my life. I still have no plan for winter but to save up as much as I can in the summer (which isn't going too well via credit card bills from last winter).
It is clear I can work during the summer. I haven't missed a day yet for any reason nor did I suffer needlessly at a job, my IC was handled by meds. Though sometimes I'm about to fall asleep at work due to meds, at least there is no suffering. I'll stick with it for as long as I can, but I must be honest with myself and fully consider the possibility of not making it all winter. There is something I can get to allow a large amount of days of excused absences via note from doctor... forgot what it was called, but saw it on the ICN. That could possibly help me get through the winter.. but my poor co-workers are already on a skeleton crew as it is. I'd hate to do that, unless they really wanted the hours, which I'd be more than happy to handover. It all comes back down to corporations not wanting to pay for overtime..affecting those of us who are sick and would like to keep the position through needed downtime due to disability.. A few of my workers kept mentioning they wanted more hours instead of being given bare minimum to keep them at part-time status and without benefits..but its cheaper just to add more part-time workers..
