I'm still okay. Only hormones really seem to be hurting me, and it's not crippling. Of course, it's still warm out without major changes in the temperature.
Just thought I'd let the internet know that my mom has figured out what causes IC. You see, I'm in pain during the winter a lot because I don't "Get out enough." That makes a whole lot of sense since the pain keeps me inside-- oh wait..
Even if you're knowledgeable in whatever disease you have, know the cause, it's name, and treatments your family, friends, or perfect strangers will still assume they know more about the disease than you and offer unhelpful, and often, insulting advice.
For support, help, and education through the eyes of one Interstitial Cystitis Warrior.
What is Interstitial Cystitis?
Interstitial Cystitis is the worst bladder infection you've ever had, except no bacteria is present, there is no cure, many foods make it worse, and separate treatments have maybe 1/3 of a chance of helping. The only true "treatment" is treating the pain, as its usually the only thing that will work. Even patients who've had their bladders removed still experience the pain. Doctors don't know what causes it or how to get rid of it but have many theories.
Need to find a doctor in your area who actually knows how to deal with IC humanely? Click here.
These are the new guidelines for diagnosing IC. If your doctor isn't using these then I suggest you find a new one who keeps up to date.
You can find the IC safe collaborated recipes between me and my step dad here.
Showing posts with label broken system. Show all posts
Showing posts with label broken system. Show all posts
Tuesday, August 28, 2012
Friday, April 27, 2012
Traveling with IC
Oh dear, Blogger has changed formats.
Well, it's been awhile. I still have spasms, but nothing like during the winter. Meds and heating pads control it so I can be productive at a desk. Tomorrow I am stepping out of my comfort zone and going to take part in a protest against the War on Women. It's something a college student like me is expected/allowed to do. What do ICers need? Hormonal birth control for flares. What are certain politicians trying to stop? Hormonal birth control. As an ICer I will go and speak for us. I think things should be okay. I'm bringing emergency pack of hand warmers for heating pad substitute, my meds, and a Nintendo DS for the ride. Oh, and water, lots of water. I think I'll be okay with these things. So far on my hour commute to and from school these things have helped me greatly. I also have a wheel chair for dire pain situations. These things make me able to travel. It's not impossible... but it does depend on your state. I don't think I'd have the courage to do this during winter months when I flare up. Or maybe I would considering the importance of this. Glad it's in the summer.
Ah, and I've found that the local Planned Parent hood here doesn't require pelvic exams for birth control. This makes my longing for informed consent and my IC happy.
Tuesday, February 7, 2012
IC and College, a broken system
Okay so I missed class today. Yes, its a damn cold front. Yes I hurt. No, I'm not going to drive an hour in a car without access to the tub since Soma isn't even helping. We had a quiz today. Problem? This is Prof. A**hole. His syllabus says this:
Assessment:
Random Reading Quizzes (you can’t make a higher grade in the course than the average of your reading quizzes)
Mid Term – 20%
Presentation – 20%
Term Paper – 30%
Final – 30%
I already missed one quiz because of AN EXCUSED ABSENCE DUE TO A DOCTORS APPOINTMENT. He didn't tell me a thing about the quiz! Two weeks later I hear my class mates talking about it! I doubt he just wrote me a 100 for it. So now every time I'm slightly late I have to ask. I usually start with good faith in my instructors. Now, will he let me make this quiz up? Or did I read the entirety of Dangeros Liasons, once spent six hours IN ONE DAY to finish it, for nothing since no matter how well I do on everything else I currently have a 0 F?
Another problem is although the disabilities' director is a nice guy and had a face-to-face chat with this professor about my "unique" (its not) condition, the disability system is still styled for the handicapped and those with learning disabilities, not people with invisible illnesses. If he lets me make up the quiz then he is redeemed in my eyes, but it sure looks suspicious I missed the first two quizzes "conveniently" even if one had been scheduled on the only day I could see my GP. Trust me, school is a lot funner than seeing my GP. For one my clothes stay on.
Assessment:
Random Reading Quizzes (you can’t make a higher grade in the course than the average of your reading quizzes)
Mid Term – 20%
Presentation – 20%
Term Paper – 30%
Final – 30%
I already missed one quiz because of AN EXCUSED ABSENCE DUE TO A DOCTORS APPOINTMENT. He didn't tell me a thing about the quiz! Two weeks later I hear my class mates talking about it! I doubt he just wrote me a 100 for it. So now every time I'm slightly late I have to ask. I usually start with good faith in my instructors. Now, will he let me make this quiz up? Or did I read the entirety of Dangeros Liasons, once spent six hours IN ONE DAY to finish it, for nothing since no matter how well I do on everything else I currently have a 0 F?
Another problem is although the disabilities' director is a nice guy and had a face-to-face chat with this professor about my "unique" (its not) condition, the disability system is still styled for the handicapped and those with learning disabilities, not people with invisible illnesses. If he lets me make up the quiz then he is redeemed in my eyes, but it sure looks suspicious I missed the first two quizzes "conveniently" even if one had been scheduled on the only day I could see my GP. Trust me, school is a lot funner than seeing my GP. For one my clothes stay on.
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