What is Interstitial Cystitis?

What is Interstitial Cystitis?


Interstitial Cystitis is the worst bladder infection you've ever had, except no bacteria is present, there is no cure, many foods make it worse, and separate treatments have maybe 1/3 of a chance of helping. The only true "treatment" is treating the pain, as its usually the only thing that will work. Even patients who've had their bladders removed still experience the pain. Doctors don't know what causes it or how to get rid of it but have many theories.



Need to find a doctor in your area who actually knows how to deal with IC humanely? Click here.

These are the new guidelines for diagnosing IC. If your doctor isn't using these then I suggest you find a new one who keeps up to date.

You can find the IC safe collaborated recipes between me and my step dad here.

Saturday, December 3, 2011

Not looking well.

I'm not sure if the cyclosporine is working. I've had terrible pains since 6. I took everything I could constantly., had a small period of time where I was mostly pain free, but as soon as I urinated everything went to hell despite the massive amounts of muscle relaxers I took. It's these damn cold fronts. I'm positive the temperature must have dropped by 10 degrees at least, and I can say this without even going outside. This Soma needs to hurry up and knock me out. I might end up going the way of Michael Jackson, when you're in pain you don't give a shit.

This isn't like labor pain, or a very painful medical procedure because this pain is chronic. I could stay in this state for a day, or weeks. I think my doctor's given me everything she can. And even with all this high leveled, controlled substances it still feels like there's and angry cat in the bladder. It burns and it spasms.

Earlier today I only spasmed when I walked, so this lead me into look for cheap wheelchairs for when I have to leave the house in this condition. Well now its just ripping itself apart for no reason. My mom discouraged the wheel chair idea, but if this is going to happen every winter I need something else to help!

Oh, right, and my pharmacy is out of cyclosporine anyway so I have to wake up early and go to this other place that magically conjures up whatever medication exists. Its more expensive, but probably because they have hired a wizard.

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