Reminds me of my doctor visit earlier this week..
"It sounds so obvious and simple, but the hardest thing an IP patient to do is, down deep in your mind,
heart and soul, stop denying that you have a serious, life-shortening, medical condition that will not go
away."
Which is exactly what she was trying to make me do after coming to terms with it and trying to plan around it. She said no, go live a "normal life" and don't waste my "talents."
My talent is writing. I am doing my talent now.
I tell people I'm very sick, but they don't understand, not even my regular doctors, and this is why you must find the right doctor at any costs. Thankfully I don't have to take any advice from my GP about my IC since she doesn't specialize in it. I get she was trying to make me feel better, but in fact it just made me feel worse -- useless. It doesn't help.
"Your attitude about pain must change. Increased pain hurts you. When the pain flares, your pulse rate
increases, and hormones stored in your adrenal gland flood your system causing further body deterioration,
rusting, and aging.
Therefore, you MUST do whatever it takes to suppress your pain and prevent flare-ups. You simply
want to keep pain as far away and as controlled as possible. Never try to "work through it" or "tough it out" or believe that character and will power will solve your problem."
This is an important point for ICers. The longer you let yourself stay in pain, the more the nerves will trigger pain and could cause symptoms to progress. Yet, try telling your mother/boss that you can't do such-and-such right now because you have to sit on your heating pad for a bit and see how understanding they are.
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