I'm back from seeing my uro, everything seems well and setup in case of emergencies. However, I swear my GPS is trying to get me killed.
"Turn right."
There is a wall there, GPS.
"Turn left"
I'm on a bridge, GPS.
I did want to go to the zoo since I don't get out much, but though the ticket prices were good the parking prices were not. Have to love those extra charges.. so we get to the ferry, see the parking fee, and we just turn around. My boyfriend wanted to get home before sunset so he could fix his car for tomorrow so he could get to work and I to school. So far the nachos have not killed me. I am eating some rice with salt in it now. So far so good. I also ate pancakes at IHOP. I'm going to slowly do this until I find my stopping point. I'm sure this means I can have potatoes again. I missed potatoes so much.
For support, help, and education through the eyes of one Interstitial Cystitis Warrior.
What is Interstitial Cystitis?
Interstitial Cystitis is the worst bladder infection you've ever had, except no bacteria is present, there is no cure, many foods make it worse, and separate treatments have maybe 1/3 of a chance of helping. The only true "treatment" is treating the pain, as its usually the only thing that will work. Even patients who've had their bladders removed still experience the pain. Doctors don't know what causes it or how to get rid of it but have many theories.
Need to find a doctor in your area who actually knows how to deal with IC humanely? Click here.
These are the new guidelines for diagnosing IC. If your doctor isn't using these then I suggest you find a new one who keeps up to date.
You can find the IC safe collaborated recipes between me and my step dad here.
Showing posts with label food. Show all posts
Showing posts with label food. Show all posts
Sunday, February 26, 2012
Back from New Orleans
Friday, February 24, 2012
Nachos are good mmkay? Colds fronts are bad mmkay?
Had nachos for the first time in 4 years yesterday. Only unsafe ingredient was salt. Today I'm in spasms, not because of the food, but because it's Louisiana. This is what the weather said:
"Hey, it's spring! Look at the redbirds and blue birds and how warm it is!"
Then today:
"lol I lied, its winter again. Oh I'm dropping to 40 tomorrow, hope you don't mind"
Moral? Don't live along the gulf if you have Pelvic Floor Dysfunction affected by the air pressure.
"Hey, it's spring! Look at the redbirds and blue birds and how warm it is!"
Then today:
"lol I lied, its winter again. Oh I'm dropping to 40 tomorrow, hope you don't mind"
Moral? Don't live along the gulf if you have Pelvic Floor Dysfunction affected by the air pressure.
Tuesday, February 21, 2012
Mardi Gras
The holiday all students look forward too! I'm drowning in midterms and professors who don't know how to use technology, but today I took the day off to just cook. IC safe gumbo (safe homemade reaux (safe flour browned in microwave or oven), a HUGE pot, a lot of water, and chicken, shrimp, and crawfish with rice. For others of the household I made unsafe, very spicy red beans and rice with sausage and cornbread muffins, though the muffins seemed okay... Jiffy brand.
It was delicious. Even without seasoning. You can still eat well without worry. Just make sure the meats don't have anything else in it BUT the meat.
It was delicious. Even without seasoning. You can still eat well without worry. Just make sure the meats don't have anything else in it BUT the meat.
Saturday, February 4, 2012
A year older and feasting
My birthday was on the third and I turned 24. Today I'm eating waffles and drinking apple cider for the first time in 3 years. My local store finally got preservative free waffles and a brand of apple cider without added vitamin C (painful for IC patients) or anything else. The waffles do have less than 2% butter milk though which may be a problem, and fruit juice is acidic regardless. I'll drink some milk later to counteract.
Friday, January 20, 2012
I want to eat this for nutrition, but all these good vitamins might hurt me
There are two vitamins ICers fear the most -- Potassium and Vitamin C. It makes us hurt a lot. In fact, the old medieval torture method of diagnosis done about 5 years ago was to force potassium into the bladder. If you screamed, you had IC. I'd scream regardless due to the catheter, and such is why I held off my diagnosis until last year when the guidelines changed.
Anyway, I bought some wheat germ. All natural, no preservatives. It's meant to be added to food, but I like the taste so use it as cereal, but then I noticed it say that it contains more potassium per ounce than any fruit. Now I'm too afraid to eat it.
On a minor, unrelated note I found out a little about my Dad's side of the family. We don't talk much. We don't mesh too well. Evidently they're somehow related to John Wilkes Booth (the guy that killed Abraham Lincoln; which is funny since I've been dating a black guy for the past 8 years), and some murderer is my second cousin. Uh.. yeah.
As for where they came from, my Pawpaw was Cajun and "hillbilly", the family has no idea where the "Goodwins" actually come from and there's only 4 of us left including me. My Mawmaw was Cajun and Irish. My Mawmaw's side keeps a nice family tree going and its fun to look at. They fought for the Confederates.
There's no mention of IC from them except that my Mawmaw had a lot of bladder problems, but this is also a lady who drank 2 pots of coffee a day. My grandmother on my mom's side was diagnosed with IC, leading me to believe it skips a generation. Past that? I don't know how many ancestors had IC. And when you consider there's a 10% chance or something that your not really related to who you think you are due to adultery and all that.. going back further may not help the research into IC as a genetic disease.
Anyway, I bought some wheat germ. All natural, no preservatives. It's meant to be added to food, but I like the taste so use it as cereal, but then I noticed it say that it contains more potassium per ounce than any fruit. Now I'm too afraid to eat it.
On a minor, unrelated note I found out a little about my Dad's side of the family. We don't talk much. We don't mesh too well. Evidently they're somehow related to John Wilkes Booth (the guy that killed Abraham Lincoln; which is funny since I've been dating a black guy for the past 8 years), and some murderer is my second cousin. Uh.. yeah.
As for where they came from, my Pawpaw was Cajun and "hillbilly", the family has no idea where the "Goodwins" actually come from and there's only 4 of us left including me. My Mawmaw was Cajun and Irish. My Mawmaw's side keeps a nice family tree going and its fun to look at. They fought for the Confederates.
There's no mention of IC from them except that my Mawmaw had a lot of bladder problems, but this is also a lady who drank 2 pots of coffee a day. My grandmother on my mom's side was diagnosed with IC, leading me to believe it skips a generation. Past that? I don't know how many ancestors had IC. And when you consider there's a 10% chance or something that your not really related to who you think you are due to adultery and all that.. going back further may not help the research into IC as a genetic disease.
Labels:
family genealogy,
food,
interstitial cystitis,
potassium,
vitamin C
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