What is Interstitial Cystitis?

What is Interstitial Cystitis?


Interstitial Cystitis is the worst bladder infection you've ever had, except no bacteria is present, there is no cure, many foods make it worse, and separate treatments have maybe 1/3 of a chance of helping. The only true "treatment" is treating the pain, as its usually the only thing that will work. Even patients who've had their bladders removed still experience the pain. Doctors don't know what causes it or how to get rid of it but have many theories.



Need to find a doctor in your area who actually knows how to deal with IC humanely? Click here.

These are the new guidelines for diagnosing IC. If your doctor isn't using these then I suggest you find a new one who keeps up to date.

You can find the IC safe collaborated recipes between me and my step dad here.

Friday, November 4, 2011

It begins

As I type I'm in a mild to moderate flare. I've taken valium, ditropan, and soma to try and stop the pain. It's made it bearable.

I just received the cyclosporine and I will start taking it tomorrow. One of the side effects happens to be cancer. This is some serious stuff. I have to have my blood pressure checked weekly and my blood checked monthly. I'm afraid of needles, but the initial blood draw was easy since my Dr. sent me some lidocaine to numb it before hand. I felt nothing more than a brush of a finger.

And so will this cyclosporine lessen my symptoms??? I sure hope so. I want to continue to graduate school and be a student teacher.. something impossible to do at the moment with my IC being as bad as it is.
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