The biggest injustice is that the layman cannot do medical research for himself because he does not have access to the scholarly journals doctors do due to their price, and so he must be blindly lead in good faith by what his doctors say.
We cannot have patient oriented healthcare like this.
For support, help, and education through the eyes of one Interstitial Cystitis Warrior.
What is Interstitial Cystitis?
Interstitial Cystitis is the worst bladder infection you've ever had, except no bacteria is present, there is no cure, many foods make it worse, and separate treatments have maybe 1/3 of a chance of helping. The only true "treatment" is treating the pain, as its usually the only thing that will work. Even patients who've had their bladders removed still experience the pain. Doctors don't know what causes it or how to get rid of it but have many theories.
Need to find a doctor in your area who actually knows how to deal with IC humanely? Click here.
These are the new guidelines for diagnosing IC. If your doctor isn't using these then I suggest you find a new one who keeps up to date.
You can find the IC safe collaborated recipes between me and my step dad here.
Showing posts with label doctors who don't listen. Show all posts
Showing posts with label doctors who don't listen. Show all posts
Saturday, February 4, 2012
Friday, January 20, 2012
New Definition of Rape
New definition of rape: http://blogs.usdoj.gov/blog/archives/1801
Wouldn't seen this if Anonymous hadn't been fing with the site earlier due to the SOPA drama. Sadly its back up, but this is a pleasant find.
The implications mean that women who felt violated during childbirth can legitimately call their experience birth rape without other women attacking them. We're all on the same team here.
If only that had the word "informed" before consent; that'd force doctors to respect our bodies, emotions, and preferences far more than what they do now.
Don't know what birth rape is, or how women could even remotely call birth a form of rape? It all has to do with how they're treated by their ever so compassionate doctors.
This sums up and gives personal stories: http://birthraped.wordpress.com/
Now maybe they can get justice. I hope ICers who've been treated like crap can have justice too. Sometimes doctors will just stick catheters up us without warning or asking.
Notice how the definition no longer exclusively includes penetration by a sexual organ or the intent of the perpetrator. If you felt violated, then you were violated.
This can bring me all the way back to the argument against enforced pap smears, but I think you guys are smart enough to connect those two things. I don't really give consent to the exam, I am coerced.
“The penetration, no matter how slight, of the vagina or anus with any body part or object, or oral penetration by a sex organ of another person, without the consent of the victim.”
Wouldn't seen this if Anonymous hadn't been fing with the site earlier due to the SOPA drama. Sadly its back up, but this is a pleasant find.
The implications mean that women who felt violated during childbirth can legitimately call their experience birth rape without other women attacking them. We're all on the same team here.
If only that had the word "informed" before consent; that'd force doctors to respect our bodies, emotions, and preferences far more than what they do now.
Don't know what birth rape is, or how women could even remotely call birth a form of rape? It all has to do with how they're treated by their ever so compassionate doctors.
This sums up and gives personal stories: http://birthraped.wordpress.com/
Now maybe they can get justice. I hope ICers who've been treated like crap can have justice too. Sometimes doctors will just stick catheters up us without warning or asking.
Notice how the definition no longer exclusively includes penetration by a sexual organ or the intent of the perpetrator. If you felt violated, then you were violated.
This can bring me all the way back to the argument against enforced pap smears, but I think you guys are smart enough to connect those two things. I don't really give consent to the exam, I am coerced.
Labels:
anonymous,
birth rape,
docters,
doctors who don't listen,
rape
Thursday, January 19, 2012
Doctors who don't listen
My last post was a rant about the pap smear I was forced to go through, just like everyone else, to receive BC. Now I'll get to the IC part of the visit. Since my pants were off she saw those deep, purple, vein lines we cause when we burn ourselves on out heating pads. She freaked out, told me to stop. I told her that I hurt too much to stop.
She berated me. I told her, "It HURTS."
She thought for a moment and prescribed an anti-anxiety med and requested to see my vitamin D levels since I was "pale" and it can effect pains.
Then she told me I need to get out more, and not let this disease control my life. I replied again, "but it HURTS. I can't do anything like this."
This is where she stopped listening and urged me to not shut myself away in my room with a heating pad. Instead I supposed I should go out until my pain gets so bad I'm in tears and the spasms are out of control. I leave my house when I feel safe. Most days during the winter I don't feel safe.
I emailed my Uro and asked if there was actually any damage that could be done from the heating bad and she said that all her patients at the same markings and it was normal for us.
Plan? Cover it up with a cool tattoo. I mean, if I ever go into remission. Until then I don't need any needles.
So for the past.. oh.. 4 days? I've been saying very loudly, "NOW I SHALL GO EAT THIS CEREAL, WHICH AS VITAMIN D, AS I GO BURN MYSELF ON THIS HEATING PAD." I think my boyfriend is tired of hearing it.
She berated me. I told her, "It HURTS."
She thought for a moment and prescribed an anti-anxiety med and requested to see my vitamin D levels since I was "pale" and it can effect pains.
Then she told me I need to get out more, and not let this disease control my life. I replied again, "but it HURTS. I can't do anything like this."
This is where she stopped listening and urged me to not shut myself away in my room with a heating pad. Instead I supposed I should go out until my pain gets so bad I'm in tears and the spasms are out of control. I leave my house when I feel safe. Most days during the winter I don't feel safe.
I emailed my Uro and asked if there was actually any damage that could be done from the heating bad and she said that all her patients at the same markings and it was normal for us.
Plan? Cover it up with a cool tattoo. I mean, if I ever go into remission. Until then I don't need any needles.
So for the past.. oh.. 4 days? I've been saying very loudly, "NOW I SHALL GO EAT THIS CEREAL, WHICH AS VITAMIN D, AS I GO BURN MYSELF ON THIS HEATING PAD." I think my boyfriend is tired of hearing it.
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