What is Interstitial Cystitis?

What is Interstitial Cystitis?


Interstitial Cystitis is the worst bladder infection you've ever had, except no bacteria is present, there is no cure, many foods make it worse, and separate treatments have maybe 1/3 of a chance of helping. The only true "treatment" is treating the pain, as its usually the only thing that will work. Even patients who've had their bladders removed still experience the pain. Doctors don't know what causes it or how to get rid of it but have many theories.



Need to find a doctor in your area who actually knows how to deal with IC humanely? Click here.

These are the new guidelines for diagnosing IC. If your doctor isn't using these then I suggest you find a new one who keeps up to date.

You can find the IC safe collaborated recipes between me and my step dad here.
Showing posts with label college. Show all posts
Showing posts with label college. Show all posts

Tuesday, February 7, 2012

IC and College, a broken system

Okay so I missed class today. Yes, its a damn cold front. Yes I hurt. No, I'm not going to drive an hour in a car without access to the tub since Soma isn't even helping. We had a quiz today. Problem? This is Prof. A**hole. His syllabus says this:

Assessment:
Random Reading Quizzes (you can’t make a higher grade in the course than the average of your reading quizzes)
Mid Term – 20%
Presentation – 20%
Term Paper – 30%
Final – 30%


I already missed one quiz because of AN EXCUSED ABSENCE DUE TO A DOCTORS APPOINTMENT. He didn't tell me a thing about the quiz! Two weeks later I hear my class mates talking about it! I doubt he just wrote me a 100 for it. So now every time I'm slightly late I have to ask. I usually start with good faith in my instructors. Now, will he let me make this quiz up? Or did I read the entirety of Dangeros Liasons, once spent six hours IN ONE DAY to finish it, for nothing since no matter how well I do on everything else I currently have a 0 F?

Another problem is although the disabilities' director is a nice guy and had a face-to-face chat with this professor about my "unique" (its not) condition, the disability system is still styled for the handicapped and those with learning disabilities, not people with invisible illnesses. If he lets me make up the quiz then he is redeemed in my eyes, but it sure looks suspicious I missed the first two quizzes "conveniently" even if one had been scheduled on the only day I could see my GP. Trust me, school is a lot funner than seeing my GP. For one my clothes stay on.

Saturday, January 14, 2012

Professor Jackass

I'll start with saying I'm not sure if this guy is a jackass or not, as I only met him for maybe.. 10 minutes since I was late to class. First time I've had to wake up before 12 in a year, so my body needs some adjustment time (plus I ace everything anyway regardless of my attendance, I read more of the material than any other students).

He seemed nice when I talked to him about my IC and such, but he seemed in a hurry so I packed up and left.

Its his syllabus that worries me. If I miss more than three classes I get a WN. Some teachers won't even tell you this, let you go to their class for the entire year, do all the work, and then at the end say you were WN'd three months prior.

Well, my disability stops me from leaving my heating pad on bad days, and I don't think they'll let me go in with no pants and a heating pad tethered to my crotch. Just a hunch.

Even more worrisome is that he counts you as absent if you're ten minutes late. I'm usually always late. I'm sick. My bed time rituals are so ridiculous it deserves its own post, I was an insomniac even before IC, and I live an hour away.

I've never had a jackass for a professor before. One even said she'd never count me absent because I always did so well on my tests and she didn't want me to suffer if I was in pain, and just to keep up with homework and email it to her. Most of my professors were pretty awesome about it, ESPECIALLY the language professors. The one who runs the language lab at my college has my picture up on the wall! I have no idea why, but I guess she really liked this picture:



I'm not even a language major, just had to take some courses, but hit it off with them great. They're all laid back. In fact I still use the language lab as just a place to sit and recline if I have to wait on something or quickly download something to my laptop. They always welcome me happily and chat. Even though it was two years ago, they still remember I have IC and often check up on me when we cross paths.

My English teachers aren't quite as laid back, but are understanding and kind. I've never had an issue with missing too many days. They probably cut me a lot of slack, but like I said my GPA is a 3.56 and I always take part in discussions and even try to start some since the rest of the class always happen to be zombies.

Hopefully this guy isn't going to follow his syllabus to the letter with me. He'd be the only professor ever to punish me so. I'll be wary..

Wednesday, January 11, 2012

First Day Back At School and a Story About Puppies

First day back at school went well. I had some pain after I used the bathroom that morning, so I rested on a heating pad until it was time to get dressed and leave. I drove on substances I shouldn't, but my medical insurance doesn't cover taxies. My town is so backwater I'm not even sure if we have taxies.

Today's class had been the final English course you must take to graduate. This is usually bad news and a hard course, or so you would think. Instead, all it is is planning your future and giving you idea for future jobs -- things we should have been taught in high school. We must follow a blog someone related to future plans. Sadly, we cannot use out own blog, but there's enough ICers blogging for me to catch one. I'll just have to snoop.

It was pretty warm today, but I wore a coat and had a heating pad in my undies anyway to make sure I stayed okay. I had some surprise errands to run, including alerting a seller of free puppies that there is a dog fighting ring nearby and to watch out for young men who "want a free puppy." My best advice was just to get their address and check it out first before deciding to give them the puppy.

She said one guy wanted her to hold one to him and just after I explained the dog fighting ring, he came. She asked me to pretend to adopt the dog since he seemed fishy (and he did -- he was young and looked fairly gangster to me, Mexican style). He was on the phone with someone as she said she was sorry but I had already adopted the puppy. We heard him say on the phone, "Don't worry, I'll find you one. I'll find you one today." This made her feel bad, but I told her that's what the pound is for. There's always puppies, and because you have to pay beforehand to get them spayed a neutered they won't be used as bait animals and in all likely-hood will be taken care of better since the pound insists on worming and vet checking before letting the adoption happen.

So, this could have been two things.
A. He was getting a puppy for his kid or younger brother, but it would have went over a lot better if he had brought the kid with him. Also, just getting the free puppy would mean he likely wasn't interested in spaying or neutering it, vet visits, or anything else that would cost money.
B. He was talking to someone who wanted a bait dog.

Ultimately I think I saved that puppy from either being neglected or being a bait animal. She said two old ladies already adopted two of them, so I felt happy about that. Even if you can't afford to get the spayed, neutered, or take them in for routine checks I feel its better to have an animal loved than put down at the pound, and by being vigilant you can stop unwanted puppies (experiences may differ -- a lab went through a hot fence to get at our doberman.. they made beautiful puppies though, looked like the old Egyptian dogs that were cat-like, thin, black, and agile: the Anubis).

Well it was an eventful day and I was tired but happy afterwards..however after using the bathroom it took 3 hours to control my pain. I spent too long away from home. I'm feeling okay, but hungry, at the moment.