Burning isn't a usual part of my IC, but with the weather its started to constantly burn and when I move the entire thing spasms. I makes me not want to stand. No research has been done on weather and IC, but it really needs to be done. A lot of ICers have extra problems during the cold months.
This would be the thing keeping me from getting a job. My normal pain can usually be ocontrolled, but despite taking valium, oxybutin, and soma it only help slightly. I need to move to the equator or something.. though my cousin said Los Angeles never gets cold or hot.. But like he said, cost of living there is insane.
So I remain tethered to my heating pad. My Grandmother's burial was today and thankfully I made it there during my 4 hour safe period. Look at a few of the grave, saw quite a bit of WWII vets who died in the 70s so they survived the war, but found one that died in '44... so.. he didn't live. There was one Vietnam one who died in the 60s, so I assume he didn't survive that war.. Saddest one was a family plot. Me and my nephew look confused at the graves, because all there was was a line of cement with markers over there. Said nephew assumed we were standing on the bodies when when I looked at their birth/death dates it turns out each one never lived past a year so their bodies fit under the grave markers.
Then I learned through looking at my grandmother's family plot that my pawpaw, her husband, had a first wife and an adopted son, both dead. The son died at 7 years old. mother said from Leukemia. Wife died a month after, mom said it was a blood clot during surgery. I don't understand how that man could keep going after losing his family within two months.
For support, help, and education through the eyes of one Interstitial Cystitis Warrior.
What is Interstitial Cystitis?
Interstitial Cystitis is the worst bladder infection you've ever had, except no bacteria is present, there is no cure, many foods make it worse, and separate treatments have maybe 1/3 of a chance of helping. The only true "treatment" is treating the pain, as its usually the only thing that will work. Even patients who've had their bladders removed still experience the pain. Doctors don't know what causes it or how to get rid of it but have many theories.
Need to find a doctor in your area who actually knows how to deal with IC humanely? Click here.
These are the new guidelines for diagnosing IC. If your doctor isn't using these then I suggest you find a new one who keeps up to date.
You can find the IC safe collaborated recipes between me and my step dad here.
Showing posts with label graveyard. Show all posts
Showing posts with label graveyard. Show all posts
Tuesday, November 29, 2011
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