What is Interstitial Cystitis?

What is Interstitial Cystitis?


Interstitial Cystitis is the worst bladder infection you've ever had, except no bacteria is present, there is no cure, many foods make it worse, and separate treatments have maybe 1/3 of a chance of helping. The only true "treatment" is treating the pain, as its usually the only thing that will work. Even patients who've had their bladders removed still experience the pain. Doctors don't know what causes it or how to get rid of it but have many theories.



Need to find a doctor in your area who actually knows how to deal with IC humanely? Click here.

These are the new guidelines for diagnosing IC. If your doctor isn't using these then I suggest you find a new one who keeps up to date.

You can find the IC safe collaborated recipes between me and my step dad here.
Showing posts with label disability. Show all posts
Showing posts with label disability. Show all posts

Thursday, January 12, 2012

Second Day of School

I woke up when it was time to leave to had to rush. Thankfully no pain. No pain at all. Not until class was over and I had to do some walking to finalize some errands, then the spasms started. There was a big cold front last night, so I'm surprised I woke up feeling well.

I took my meds, finished my errands, got home and sat on a heating pad before letting my bladder empty itself then that's when the worst pain comes. Well, after going to the bathroom I'm tethered to the heating pad. Its bearable, but makes me not want to move. At all. I really think a wheel chair would be the best option for me for now.. but they are expensive, my insurance won't cover rent on one for a few months, and my mom thinks I'm being dramatic.

So that's my status update. There's housework that needs to be done and I will be screamed at for not doing them, but I'm not leaving this heating pad until I feel "normal" again.

Friday, December 23, 2011

The Blind

Mother continues to dismiss my pain. I requested help getting a fold up wheelchair for campus use weeks ago and she said it was stupid, I would only weaken my legs despite me telling her I wasn't going to use it in the house.

After the flare yesterday I've decided that I do NEED one for those days. Bonus points if I can find a battery operated heating pad.

You know what she did? She gave away my Grandmother's scooter to my uncle (which is fine, because I can't load that in my car and he has cancer), BUT the folding wheelchair? She's giving it to some distant relative who's "old."

So I'm not "old" enough in her eyes to use a wheelchair to prevent flares. When I talked to her again, asking for the free wheel chair she said, and I quote, "That's ridiculous."

The hardest part is at the beginning of this she was very supportive. She made food for me when I couldn't leave bed, bought me things I could eat, and paid for my meds. Now? No. Now I'm just making it up because I should be "better" by now. I've been completely dismissed. I'm going to try and get one through insurance. So rather than give me a free one, I have to waste more money.