What is Interstitial Cystitis?

What is Interstitial Cystitis?


Interstitial Cystitis is the worst bladder infection you've ever had, except no bacteria is present, there is no cure, many foods make it worse, and separate treatments have maybe 1/3 of a chance of helping. The only true "treatment" is treating the pain, as its usually the only thing that will work. Even patients who've had their bladders removed still experience the pain. Doctors don't know what causes it or how to get rid of it but have many theories.



Need to find a doctor in your area who actually knows how to deal with IC humanely? Click here.

These are the new guidelines for diagnosing IC. If your doctor isn't using these then I suggest you find a new one who keeps up to date.

You can find the IC safe collaborated recipes between me and my step dad here.

Thursday, September 20, 2012

Hoping for Future Prospects

There isn't much to say still. As is the nature of diseases like IC, you don't complain much when you feel better. I did have a small scare a few weeks back during the first major cold front. For about five hours I was in some pain, but the meds took care of it. We've been having colder weather for the past week and I seem to be doing alright.

Now I just have the generic worries of someone my age for now.. with the added stress of not knowing when my life may be randomly shut down again. I'm too afraid to hop to a better job because I don't want to ruin my chances of getting there again if I have to drop out of there after only a month of working there because my bladder decided it was no longer okay with the winter. Since that makes me feel stuck at my current job, I'm a bit bitter towards it by no fault of its own.

One thing I would like to do though is get into web design. I already have some experience with CSS and HTML, but not enough to do it as a living.. hobby wise I can produce most of what I want. I would hope it'd be enough to let me work from home so I wouldn't have to worry about my health every year and rather or not hopping jobs would be a worthy risk. Even though I'm not taking so much medicine now (although I should be) money's still very tight here and losing my job due to the disease could be disastrous for us.

I'm not sure how to get a foot into web design or anything: if classes would be better or if self teaching would be better..? Then that still leaves the issue of getting some anonymous person online to pay me, another anonymous person online, to do the job. It just doesn't seem very stable.

Everything else seems well and I should be enjoying this period of normality, but the whole thing of my life possibly being shut again down is just hanging over my head. I really want to save money to prepare for that but I also need to pay off the bills I built up while I was sick.